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Author Topic: Izabelle and her seizures ......*update* #2  (Read 6895 times)

Offline horsepoor21

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Re: Izabelle and her seizures ......
« Reply #15 on: October 13, 2006, 09:09:43 am »
Hey , good idea with the unwrapping presents ! I will do that ! I think I'm basically going to just let her have everything she's normally not allowed to have all night long . LOL Minus pop or candy since she's not supposed to have caffeine in her system before the test ( TOO BAD ! ....Never thought I'd say that ! LOL ) . So all the arts and crafts we have in the school room that are normally locked up , some of her brother's *cool* toys they never want to share , etc .... I tried telling my husband having a puppy around would really help but he didn't go for that one ! LOL
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-Amy
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Offline horsepoor21

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Re: Izabelle and her seizures ......
« Reply #16 on: October 15, 2006, 04:31:40 pm »
We thought of a hotel room right away but unfortunetly I have no friends or family to take care of all the critters while we're gone  :-\ I'm getting anxious/nervous about all of this ,I sure can't wait until it's over . I'm just scared they'll either #1: Find nothing and we'll always wonder .,....or worse #2 find something really awesome that involves surgery or something . Ack , I'll go with number one if I must choose !
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-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline horsepoor21

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Re: Izabelle and her seizures ......*update*
« Reply #17 on: October 19, 2006, 04:55:03 pm »
Well we made it thru OK !!! Tuesday night was a little rough , keeping her up until midnight . Waking Izabelle up at 4 am was kinda funny , she just stood there with her eyes closed swaying back and forth . hehe I got some of our critters out to play with her and that woke her up fast as she hardly gets to see them since they're nocturnal . The car ride in , whew .... That was another story ! She should have shaken baby syndrom with how much I kept jiggling her to keep her awake ! LOL We found out she can stand up in a moving vehicle while sleeping . LOL By the time we made it to the doctor's office she had caught her second wind ( that'll happen when it's 20 degrees out ! ) and I found myself wondering how I was going to get her to go to sleep ! LOL They glued all 25 of those little wires to her little head and she sat so good for it , then we sat back in a recliner , they propped up my feet , put a warm fuzzy blanket on us , turned out the lights and played soft music ...... an hour later they were waking us both up ! LOL So , we made it thru and the results should be back tomorrow or the next day !
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-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline Leah-n-boy-os

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Re: Izabelle and her seizures ......*update*
« Reply #18 on: October 19, 2006, 05:25:33 pm »
Hooray!!! I'm so glad she was such a good girl for you.  ;D Now, we'll just all keep our fingers/paws/toes/what-have-yous that the results come back ina good light.

Keep us updated dear.
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Leah and the Boy-os
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Offline horsepoor21

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Re: Izabelle and her seizures ......*update*
« Reply #19 on: October 23, 2006, 12:58:01 pm »
Okay , got the SD-EEG results back today , first they said everything looks normal . Then they called back hours later and said after further review of the test they see she had an irregular heartbeat during the test but " Don't worry about it for now"  ??? and she's still supposed to meet with a neurologist on November 6th , so , I *guess* this is good news ? Or not ! LOL I don't know , but I'm trying to forget about it until her next apt. !
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-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline newflvr

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Re: Izabelle and her seizures ......*update* #2
« Reply #20 on: October 23, 2006, 01:07:38 pm »
I agree to stop thinking about it for the time being, since there's not a thing you can do anyway.  The good news is there isn't anything that is obvious so whatever it is mustn't be too bad (fingers firmly crossed here and touching wood!!).  I would think the irregular heartbeat is from being so tired!!  It happens to me all the time and I'm old so it's not life-threatening!

Good job!  You're handling a tough situation well!! ;)
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Offline longshadowfarms

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Re: Izabelle and her seizures ......*update* #2
« Reply #21 on: October 23, 2006, 01:41:43 pm »
It obviously wasn't "irregular" enough to see a heart specialist ASAP, wasn't caught until a second review and they also need to be super cautious about anything even remotely, slightly out of the ordinary.  Sounds like you're pretty close to being in the clear though I'm sure you won't feel like that until you get all the details from the doc.  Glad the worst of it seems to be over!
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Offline horsepoor21

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Re: Izabelle and her seizures ......*update* #2
« Reply #22 on: October 23, 2006, 01:48:47 pm »
I'm, of course , happy with the normal results , but I have to admit I am somewhat disapointed , I was just hoping for some kind of answer as to why she's still having seizures  ??? I just wish we knew why !
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-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline longshadowfarms

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Re: Izabelle and her seizures ......*update* #2
« Reply #23 on: October 23, 2006, 01:52:27 pm »
Quote from: horsepoor21 on October 23, 2006, 01:48:47 pm
I'm, of course , happy with the normal results , but I have to admit I am somewhat disapointed , I was just hoping for some kind of answer as to why she's still having seizures  ??? I just wish we knew why !

I'm sorry!  I didn't read through again today and was thinking she had not had any more in a while.  That is disturbing. 
« Last Edit: October 23, 2006, 01:52:59 pm by longshadowfarms »
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Offline newflvr

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Re: Izabelle and her seizures ......*update* #2
« Reply #24 on: October 23, 2006, 02:41:19 pm »
Quote from: horsepoor21 on October 23, 2006, 01:48:47 pm
I'm, of course , happy with the normal results , but I have to admit I am somewhat disapointed , I was just hoping for some kind of answer as to why she's still having seizures  ??? I just wish we knew why !

If there wasn't a clear malformation, clear reason for the seizures, it will probably be 'idiopathic epilepsy'.  That's the thing with idiopathic epilepsy...the re's never a 'for sure' reason.  I think it's actually good that there isn't a brain malformation, etc.  It could be just an 'electrical' thing that she may outgrow with time.  Medications are so good now and she's SO young.  I think there's a lot of reason for hope!!  I'm counting on it!
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Offline horsepoor21

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Re: Izabelle and her seizures ......*update* #2
« Reply #25 on: October 23, 2006, 03:38:13 pm »
I didn't mean to sound mad or anything , I'm sorry !  :o In my mind I was hoping for just the slightest thing to show up on the EEG , something they could say " We see what is causing them , but you're in luck , it's healing nicely and will be gone in no time " LOL In the perfect world , right ?  :D She's otherwise , as healthy as can be and I thank God for that !!!!
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-Amy
Moose-Border Collie/Newfoundland rescue
Allie-Newfoundland
Spook-Newfoundland
Whiskey-Arabian
Wolverine-Cockatiel
Polly&Rainbow-Lovebirds (with 3 babies!)
Crush-Painted Turtle

       "Every boy should have two things:
 A dog, and a mother willing to let him have one"

Offline Leah-n-boy-os

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Re: Izabelle and her seizures ......*update* #2
« Reply #26 on: October 23, 2006, 05:42:19 pm »
Quote from: newflvr on October 23, 2006, 02:41:19 pm

If there wasn't a clear malformation, clear reason for the seizures, it will probably be 'idiopathic epilepsy'.  That's the thing with idiopathic epilepsy...the re's never a 'for sure' reason.  I think it's actually good that there isn't a brain malformation, etc.  It could be just an 'electrical' thing that she may outgrow with time.  Medications are so good now and she's SO young.  I think there's a lot of reason for hope!!  I'm counting on it!

That's it in a nutshell! As Jon's Doc put it...(summarizing)

"Think of the brain as a car's engine. Right now, the sparkplugs aren't right. As we grow, our brain grows as well and that forces the "wiring" to change as well. With luck (and he explained that this truly happens with most cases of pediactric epilipsy) they will outgrow the seizures as the hormones and chemicals change in the brain.

We're all pulling for you and Iz right now. Be sure to keep us updated.
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Leah and the Boy-os
Apollo (Akita/St. Bernard)
Zeus (Heinz 57)
Onyx (Newfoundland)
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Offline newflvr

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Re: Izabelle and her seizures ......*update* #2
« Reply #27 on: October 23, 2006, 06:06:15 pm »
Quote from: horsepoor21 on October 23, 2006, 03:38:13 pm
I didn't mean to sound mad or anything , I'm sorry !  :o In my mind I was hoping for just the slightest thing to show up on the EEG , something they could say " We see what is causing them , but you're in luck , it's healing nicely and will be gone in no time " LOL In the perfect world , right ?  :D She's otherwise , as healthy as can be and I thank God for that !!!!
Heavens!  I never thought you were mad!  Frustrated?  Yep!  Scared?  Absolutely!  but not mad.  I've had scary things with all four of my kids and the things I worried about most, usually never happened.  It's the things I didn't expect that seemed to be overwhelming at the time (and those things too, got better!!) 

Things will get better!!  I just know it!
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